Friday, February 1, 2013

Bone Marrow Transplant news


Dear Friend, loved one, or soon-to-be friend or loved one,

As you may or may not know, Julie Mueller, a seamstress, bibliophile, fishing enthusiast, loving dog rescuer, and wonderful mother of one daughter and one Corgi, was recently diagnosed with Stage 3 Multiple Myeloma, an incurable, but treatable, form of bone cancer.

After months of misdiagnosis at other clinics, the incredible doctors at Moffitt Cancer Center spotted and removed a malignant softball-sized tumor off of her left knee. Since then, she has been undergoing high doses of chemotherapy to prevent any other kind of sports equipment-shaped tumors from growing out of her bones.

While to date, there are no footballs or frisbees under her skin, the chemo has taken a toll on her both physically and financially as the knee surgery and chemicals have left her completely unable to work. Now, with the hope of going into remission, Julie will be undergoing an autologous bone marrow transplant (BMT). While we are thinking positive, we know this will be a very long, very painful procedure that will leave her physically, emotionally, and financially exhausted.

We know this is not going to be an easy process. We know it’s not going to be fun. But we know we want to make sure it is the best experience it can be.

In order to ensure this, we are doing three things:

STEP ONE TO BEST BMT EXPERIENCE EVER: I (MIRANDA) AM MOVING TO FLORIDA

I, Miranda, Julie's daughter, am leaving my job and moving from Paris, France to Sarasota, Florida to be with my mother and to become her full-time caretaker during this 30-day journey.

STEP TWO TO BEST BMT EXPERIENCE EVER: JULIE, MIRANDA, AND FOXY ARE SHAVING THEIR HEADS TOGETHER!

Normally, the “Drain-o”-like chemicals would flow through her during the operation to kill all the bad cancer cells in her bone marrow, thereby killing her hair follicles in the process. Instead of waiting for the medication to take its toll, Julie is going to beat the meds to the punch and shave her head first! To show her solidarity, Miranda is also going to shave her head - 16 inches of it! - and donate it to Locks of Love. Foxy, Julie's corgi, who was unable to provide an eloquent reasoning other than "Awooo!", will be getting a full two inches of dog hair shaved off the top of her head as well. We imagine our favorite canine companion would want to be part of our group of cancer-free, hair-free ladies, too! Of course we will record the entire process and keep you updated throughout the process through our website on the Caring Bridge.

STEP THREE TO BEST BMT EXPERIENCE EVER: WE ARE ASKING YOU FOR HELP!

Nope. Not asking you to shave your head - don't worry! We are just asking you to make a small sacrifice of your own to support us during this process. If you make a tax-deductible monetary donation in any amount to our One-to-One fund through the Bone Marrow Organization
,
 
 you will be helping Julie stay comfortable during and after the bone marrow transplant. With your help, she will be able to pay for:
  • Co-pays and deductibles for medicines and doctor visits
  • Outstanding medical bills
  • Lodging pre- and post-operation
  • Transportation to and from Moffitt Cancer Center (one and a half hours away from her home in Sarasota, FL)
  • Grocery bills
  • Cell phone bills
  • A dog-walker (Foxy is part of this too!)
  • Fun activities (cards/games/etc) to help us pass the time
  • Many other practical, unpredictable expenses
We are hoping to raise at least $3,000 to pay the deductible and make ends meet during these tough few months. You will be helping our family enormously with any help you can provide.

Though we do not have a lot of money, we do have a lot of love, so after you donate, please keep in touch with us through our facebook and Blogger.com sites, listed below! We want to show you how much we appreciate your help and want to keep you with us as part of this process.

At the other end of this tunnel, Julie will have a new cancer-free body full of good stem cells and good love. Please help us get there!

Contact Julie at: jglienna@gmail.com

Contact Miranda at: mueller.miranda@gmail.com

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